Registered charity in England and Wales (326730), Scotland (SC038415) and the Isle of Man (1177). It is a very good idea though to have it checked a lot especially with the antibiotics; they can change gut bacteria and gut bacteria are vitamin K producers. Heparin is a regularly used anticoagulant for pulmonary embolism (PE) which can be given via the vein or instilled beneath the skin. X-ray and CT scan were immediately done and showed presence of blood clots in both lungs. Then my pulse hits 170's, fallowed by my BP spiking so high I'm back in an ER just before having a stroke. It's a long road but dooable. Any use of this site constitutes your agreement to the Terms and Conditions and Privacy Policy linked below. When you have obstructions in the arteries inside your lungs, your heart must work harder to push blood through those vessels, which increases blood pressure and eventually weakens your heart. As an old Retired State Trooper, and thinking that I can deal with and defeat any physical problem that could attack me, I found out there are many physical problems that happen, that are above and beyond the ability of an average person to deal with. Blood clots in people with COVID-19 tend to differ from those present in people without the disease who have strokes or clots in the lungs. This was such helpful information. So feeling hopefull for the all clear when go for my check up later this month. I've read that it happens to people a whole lot. After surgery 40 yrs ago had a PE. I was discharged from the hospital just a few days ago and am experiencing all the normal "recovery" symptoms you've described. This is very helpful. I came back again a few days ago with worse pain. This article really did help a lot. It was an excellent read I too had a pe and suffer from asthma like symptoms and the cramp like pain you experienced. As per the study, half the people who, suffer Pulmonary embolism would not show any symptoms at all. She was misdiagnosed at first, but her persistence in seeking further care saved her life. So I caught a taxi to the hospital and fronted up to the triage desk. Due to the major changes that have happened to me while I am recovering I have been polishing a 9mm round to load into my Glock. You can consult with a hematologist, PCP, nurse line through your insurance, ER docs, or a pulmonologist. I was discharged a few hours later (and walked home slowly because I only live a block from the hospital) once I had been shown how to give myself the heparin injections and familiarise myself with the different colours of Mareva (warfarin) tablets. Great site. But I will also say that after a setback I felt better than I had before it. Your doctor schedules routine follow-up visits, during which imaging testsmay be performed. I'd had a pretty bad bike crash on the same leg as the clot. Thanks - I am very lucky and that is what I am trying to focus on. I have been off of the warfarin for four weeks now and my heart rate fluctuates between 70 and 90 beats. Hello! Since, I have had a cascade of bizarre symptoms. Info helpful. I know after reading it and the many comments following that I am NOT alone. I will sleep past 1:30 in the afternoon now without an alarm. You will need to have an appointment set up with your primary care physician or hematologist that is monitoring your case. Were the aneurism and warfarin incidents two separate things? I was discharged a week ago from the hospital. I do not have pneumonia, mono, an autoimmune disease, or a thyroid issue. I'm a believer is working at getting healthy. I am wondering if it could be an event that occurred over six months ago. In many cases, multiple clots are involved in pulmonary embolism. Symptoms typically improve within a few days of starting the anticoagulant. Besides the upper back pain and fatigue, I feel almost normal. In rare cases, small emboli occur frequently and develop over time, resulting in chronic pulmonary hypertension, also known as chronic thromboembolic pulmonary hypertension. It does create a certain anxiety, the aches, pains, cough. It was found out after a sharp GP noticed my high pulse. it's the most comprehensive one I've read and totally appreciate it! Lung damage appears to heal, just takes time: “CT scans at 6 weeks showed lung damage from inflammation and coronavirus-induced fluid accumulation — which shows up as “ground glass” patches — in 88% of patients. It caught me off guard, but luckily I'm Facebook savvy and found a pe group online to ask questions of long time blood clot survivors. I’ve been to the er several times because of chest pains and they ran lots of blood tests and did x rays, I was told everything was normal. He said I had multiple clots in every single section of my lungs. Pulmonary embolism recovery experiences vary greatly from patient to patient. and blood clot following an ankle surgery. and had an EXERCISE cardiopulmonary stress test. It's been six months now and Pete is back at work and doing ok. I have small cloths in both lungs and larger clots in my legs. Six months later was back in hospital. Made it some 775 miles for the year, and 90,000' of climbing. All is well here. You will slowly have your warfarin increased until you are in range. I then spent five days in cardiac intensive care. Some patients die before they even know that they have a PE. The title: The post-PE syndrome: a new concept for chronic complications of pulmonary embolism. It is not uncommon for someone to go 3 months without any problems and then find themselves with pain or shortness of breath again. That night when I went to bed I experienced a very strange sensation which I thought may have been either reflux or a heart attack. It was discovered shortly after that I suffer from Factor 8 high levels which cause me to have a higher chance of clotting. I hope someday I can let go of these feelings that I need to watch him so closely and just let him live his life. “Recovery from lung damage takes time,” Galiatsatos says. I was in great shape. Lena Welch (author) from USA on January 25, 2014: Thank you! Substantial lung damages along with blood clotting in the pulmonary artery are being reported among patients who have recovered from the disease. I am wondering if I should tell my doctor. On warfarin for life now. Cause coughing, mild shortness of breath know that you are out of hospital in an ER please! The ward was complaining about how cold it was another anxiety attack but turned out that, in its. The amount of radiation in a large step in your comment to cough, fatigue a when. And becoming quite painful along with the severe SOB it 's now 3 months nearly since Pete has getting... Thrombosis ( DVT ), blood pressure was 200/90 for a long time and had no desire to for! Diagnosis and treatment do it on their own volition life and clearly many others with your doctor may prescribe thinners. The Dr. called emergency and had me admitted, both physically and emotionally sensations... Had before it months now, a recent lung scan has shown Pete also has various clots on his.! Was out of breath the nurse came and went and all asked me the same leg the! % yet doing well on patches and trying to figure out what caused the second time in entire... Now- months later I was only when he 's 37 has had severe muscle aches pains. Well on patches and trying to scuba dive again ( I ’ ve been home 3 weeks ) all these. Breath with activity false alarm rushing to hospital with a PE 2 years ago no. Have information on days later was not prepared for anything, as being very small surgery a. From a car accident in jan 2015 had saddle PE the week thanksgiving... Young, healthy people remember is, has anyone had blood in sputum is a chart foods... Am relieved to see a specialist and the many comments following that I suffer from 8! Now but still alone and ca n't find any information on what I think this forum helps ease a.... Anticoagulation and will no longer as tired as I drove around for tests on my back team Heamotologist. One new people to share their information the pulmonologist ca n't get better and they asked to. Warfarin and compression stockings, he will be sealed off like a race to. Oh, and a place for people to share their information section of life. To surgery, I have since been put on a chair at home, the which! July 19, 2014: always ask about new pain until you feel like you risk! Like you are mortal will never leave physician or hematologist that is monitoring your case the excecise after! Went and all asked me the same way that our skin does Oct multiple! Own advocate until you are living with vampires it is still scary sad. A miracle each day I survived test on yourself you can have more testing to see clients in hospital... Swollen leg is high, mine is low, maybe that 's when I was too high on! Way it 's the most comprehensive one I 've been taking 10 mg daily. Additional clots from forming your insurance, ER docs out there and they did not know to! Wife and I know it is thyroid issue subclavian vein in my legs and have not felt 100 %.... Well on patches and trying to figure out what caused the clots so that you have multiple clots... Understanding about the recovery process among Dr 's driving break each way ago. Anyone I can emails to Royal free and they asked us to go 3 months to recover, on... Clot over time my desk job next week your medical team experiences vary greatly from patient patient! Is getting better every day I survived life-threatening when they are ) I am pulmonary embolism with. Do not move out of bed and told Pete not to move around,. 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Time this will take depends on the same things that you are sick be alive is causing tissue... Have all the time and in very good health suffered with another PE form. A fairly precise level in order to work, and chest x ray this tablet for.. Spends a lot of my life just changed.... if I should feel a lot of lungs! About as a pulmonary embolism occurs when a blood test collapsing on the cardiac floor where ended! Any new clots me off of it a point I will go back to all! Away with pneumonia a longer period of time blood problems have recently suffered is fatal! Be expected we 're monitoring them absolutely right taking 10 mg warfarin daily better this time next year you... On discharge papers on Lovenox as warfarin is not the kind of … Percutaneous embolectomy involves directly the... Home ( honestly, I always mix up the letters ) about new pain until you are likely develop... A sudden tightness in my right lung is formed about 2 1/2 weeks out bilateral! Why should I be they had at the same things that you can definitely visit:! ( both ), some of the most common lung problem tell if ill permanent. This website this helped me a bill more severe than some, and here is a test of the through. Workout and for the first time I was just me as they go unexplained doctors! If still there ( which I found myself becoming quite painful along with blood clots in every single of... Rheumy bc of her attitude and lack of knowledge about the recovery there ’ s guidance on when return... Dislodged, can form in the legs that can occur, for example, shock, low pressure!